Petition to Add an ICD-9 Code for Wandering Behavior

The following is from the Autism Research Institute (ARI) requesting signature for a petition to add an ICD-9 diagnostic code for wandering behavior, which is a concern for many parents of children with autism.

An ICD-9-CM diagnostic code for wandering is very much needed because too many individuals on the autism spectrum are at-risk for this often dangerous behavior.

Among many things, such a diagnostic code will likely lead to:

  • Greater awareness of wandering behavior by physicians, emergency search-and-rescue teams, other health-care workers, caregivers, and educators
  • The creation and distribution of prevention and advice materials
  • More research on this problem and ways to prevent it.

The National Autism Association has spearheaded a national effort to establish an ICD-9-CM diagnostic code for wandering behavior. Please take a moment to complete the online petition.

Click Here to sign the petition to help keep our loved ones safe from wandering-related injuries and death

Steve Edelson, Ph.D.
Executive Director, Autism Research Institute

Photo: huntz/Flickr

About Melissa

Melissa is the mother of two children on the autism spectrum and strives to provide information about all aspects of autism through her blog, The Autism Education Site. Follow Melissa on Twitter. Like me on Facebook.

© Melissa Hincha-Ownby and The Autism Education Site, 2008-2014.


  1. [...] week I discussed a new petition by the Autism Research Institute supporting the inclusion of an ICD-9 diagnostic code for wandering behavior. As a parent of two children who are prone to wander, my immediate thought was, “hey, this is [...]

  2. [...] have also worked with many children that run or wander away. It is difficult for teachers to keep track of all the kids, especially after school. A good friend [...]